London/SE LAM Group In-Person Meeting

London/SE LAM Group In-Person Meeting

For the first time in over two years, the London/SE LAM Group will be meeting in person! Our get-together will be on Saturday, 24 September, from 2:00 pm. We are scouting for a location convenient to a Central London train/tube station and hope to find something with outdoor seating (and hope for suitable weather too!). If you would like to join us, please email Jill Pateman before 3:00 pm on Wednesday, 21 September, at jill.pateman@office.lamaction.org and she will provide you with more information.

LAM Action Virtual Meeting celebrates 25 years

LAM Action Virtual Meeting celebrates 25 years

LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022.  The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in.  You can watch the recording of the event here.

 

AGENDA

10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’

11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years

11.50 A video tour of the LAM Research Lab in Nottingham

12.50 Dr Debbie Clements – ‘An update from the lab’

12.40 Messages from LAM groups around the world

13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’

 

 

Jade Group (virtual) get-together

Jade Group (virtual) get-together

The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 – 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.

 

Help us Celebrate with LAM Action’s 25 Challenge

This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice based around the number 25 and fundraise or donate to support LAM Action. The 25 Challenge is open to all ages and the ideas and options are endless! Whether you run for 25 miles or just walk 25 times round your garden, juggle for 25 minutes or play the piano for 2.5 hours, bake 25 cupcakes or sit in icy water for 25 seconds – your support for LAM Action will be invaluable. To fundraise for LAM Action, please click here www.justgiving.com/lamaction or donate directly here. Please send news and pictures of your 25 Challenge events to david.mercer@office.lamaction.org.

Annual Meeting 11 June 2022

Annual Meeting 11 June 2022

LAM Action’s annual meeting will be held virtually on Saturday, 11 June 2022. We will kick-off with our formal AGM at 10 am, followed by what promises to be an extra special meeting of presentations and celebrations. This year marks LAM Action’s 25th Anniversary, and our meeting will highlight the tremendous progress made in LAM research, understanding and patient-led achievements over the last 25 years. For more information, please contact jill.pateman@office.lamaction.org

Lavender Group (virtual) get-together

Lavender Group (virtual) get-together

The next virtual get-together for the Lavender Group (those with LAM born before 1960) will be on Tuesday, 14 June, from 18:00 – 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 7 June and she will send you the Zoom link.