LAM Action’s annual meeting will be an online event on Saturday, 10 June from 10:00 to about 14:00 (BST).
Our formal ‘virtual’ AGM will start at 10:00 (BST). Even if you are not a member of LAM Action, we encourage you to attend the AGM to hear about LAM Action’s activities, achievements and financial results for 2022. Following the AGM, we will hold ‘virtually’ our broader annual meeting. We have put together a great programme, which we think offers something for everyone.
10:40 -11:10 Medical management of LAM in the UK — Professor Simon Johnson
11:10 -11:40 Diet considerations for those with LAM — Dr Caroline Hill
11:40 -11:50 Break
11:50 -12:05 First-hand stories about living with LAM — Several women with LAM
12:05 -12:40 Finding new ways of treating LAM — Dr Debbie Clements
12:40 -13:00 Break
13:00 -13:30 Let’s talk about the menopause — Dr Karen Morton
13:30 -14:00 Lucy Falconer Talk, LAM disease – past, present, and future — Dr Vera Krymskaya
14:00 – Closing comments and Q&A
Please contact Jill Pateman, at email@example.com no later than 15:00 (BST) on Wednesday 7 June 2023 if you would like to attend either or both meetings. Jill will provide you with instructions on how to attend.
Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May.
Team Johnson – Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater
Simon Fairbrother Jo Pisani
Kev Jones and Lisa Cooper All these riders covered 100 miles
and Andrew Barham completed the 60 mile route
We really appreciate all that they did in training, fundraising and the event itself.
Here are their fundraising pages:
For the first time in over two years, the London/SE LAM Group will be meeting in person! Our get-together will be on Saturday, 24 September, from 2:00 pm. We are scouting for a location convenient to a Central London train/tube station and hope to find something with outdoor seating (and hope for suitable weather too!). If you would like to join us, please email Jill Pateman before 3:00 pm on Wednesday, 21 September, at firstname.lastname@example.org and she will provide you with more information.
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 – 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.
This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice based around the number 25 and fundraise or donate to support LAM Action. The 25 Challenge is open to all ages and the ideas and options are endless! Whether you run for 25 miles or just walk 25 times round your garden, juggle for 25 minutes or play the piano for 2.5 hours, bake 25 cupcakes or sit in icy water for 25 seconds – your support for LAM Action will be invaluable. To fundraise for LAM Action, please click here www.justgiving.com/lamaction or donate directly here. Please send news and pictures of your 25 Challenge events to email@example.com.