About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

London/SE LAM Group (Virtual) Meeting

London/SE LAM Group (Virtual) Meeting

The next get-together of the London/SE LAM Group will be on Monday, 18 July, via Zoom, from 6:00-7:30 pm. If you would like to participate, please email Jill Pateman before 3:00 pm on Wednesday, 13 July, at jill.pateman@office.lamaction.org.

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LAM Action Virtual Meeting celebrates 25 years

LAM Action Virtual Meeting celebrates 25 years

LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022.  The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was...

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Jade Group (virtual) get-together

Jade Group (virtual) get-together

The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 - 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.  

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.