Find out more about LAM
Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.
Find out what help is available
As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.
Recent NEWS
LAM Action’s 2024 Patients’ Meeting
LAM Action held its first in-person Patients' Meeting for 5 years in Birmingham on 8th June 2024. The full day event included research updates from Prof Simon Johnson and Dr Debbie Clements, an overview of the LifeArc research project which will involve LAM patients, a look at exercise and LAM, a session about breathing techniques and another...
Spring 2025 LAMPost
The spring edition of LAMPost is now available to download - big thanks to all who contributed! Download the style that suits you, to read on your phone: LAMPost Spring 2025 Mobile Device Friendly Or to print: LAMPost Spring 2025 Print Version Happy reading and best wishes for Easter from LAM Action.
Patient Engagement
The unique patient engagement at the heart of the LifeArc Rare Respiratory Disease (RRD) Centre is discussed in a press release issued on behalf of LAM Action. To read a copy of the press release, please click here.
GET INVOLVED
How can you help us?
LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.
