LAM Action held its fourth Patients’ Meeting virtually on 10th June 2023. The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the Perelman School of Medicine at the University of Pennsylvania. There are chapters marked within the recording so that you can move forward to view different talks. You can watch the recording of the event here.
10.40 Prof. Simon Johnson – ‘Medical management of LAM in the UK’
11.10 Dr Caroline Hill – ‘Diet considerations for those with LAM’
11.50 Personal stories of living with LAM
12.05 Dr Debbie Clements – ‘New ways of treating LAM’
13.00 Dr Karen Morton – ‘Let’s talk about the menopause’
13.30 The Lucy Falconer Talk – Dr Vera Krimskaya – ‘LAM Research: Past, present and future’
LAM Action’s annual meeting will be an online event on Saturday, 10 June from 10:00 to about 14:00 (BST).
Our formal ‘virtual’ AGM will start at 10:00 (BST). Even if you are not a member of LAM Action, we encourage you to attend the AGM to hear about LAM Action’s activities, achievements and financial results for 2022. Following the AGM, we will hold ‘virtually’ our broader annual meeting. We have put together a great programme, which we think offers something for everyone.
10:40 -11:10 Medical management of LAM in the UK — Professor Simon Johnson
11:10 -11:40 Diet considerations for those with LAM — Dr Caroline Hill
11:40 -11:50 Break
11:50 -12:05 First-hand stories about living with LAM — Several women with LAM
12:05 -12:40 Finding new ways of treating LAM — Dr Debbie Clements
12:40 -13:00 Break
13:00 -13:30 Let’s talk about the menopause — Dr Karen Morton
13:30 -14:00 Lucy Falconer Talk, LAM disease – past, present, and future — Dr Vera Krymskaya
14:00 – Closing comments and Q&A
Please contact Jill Pateman, at firstname.lastname@example.org no later than 15:00 (BST) on Wednesday 7 June 2023 if you would like to attend either or both meetings. Jill will provide you with instructions on how to attend.
For the first time in over two years, the London/SE LAM Group will be meeting in person! Our get-together will be on Saturday, 24 September, from 2:00 pm. We are scouting for a location convenient to a Central London train/tube station and hope to find something with outdoor seating (and hope for suitable weather too!). If you would like to join us, please email Jill Pateman before 3:00 pm on Wednesday, 21 September, at email@example.com and she will provide you with more information.
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 – 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.
LAM Action’s annual meeting will be held virtually on Saturday, 11 June 2022. We will kick-off with our formal AGM at 10 am, followed by what promises to be an extra special meeting of presentations and celebrations. This year marks LAM Action’s 25th Anniversary, and our meeting will highlight the tremendous progress made in LAM research, understanding and patient-led achievements over the last 25 years. For more information, please contact firstname.lastname@example.org