LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice based around the number 25 and fundraise or donate to support LAM Action. The 25 Challenge is open to all ages and the ideas and options are endless! Whether you run for 25 miles or just walk 25 times round your garden, juggle for 25 minutes or play the piano for 2.5 hours, bake 25 cupcakes or sit in icy water for 25 seconds – your support for LAM Action will be invaluable. To fundraise for LAM Action, please click here www.justgiving.com/lamaction or donate directly here. Please send news and pictures of your 25 Challenge events to email@example.com.
The world’s biggest cycling event is happening once more – on 29th May 2022. This time the 100 mile route will head out from London to the leafy lanes of Essex before returning to finish in front of the iconic landmarks of the city.
If you are interested or know of someone who would like to take part please complete the application form and return it to firstname.lastname@example.org Ride London Application Form 2022
The theme of repurposing medicines for use with other diseases was recently discussed at the LAM Action Annual Meeting. Medical research charity LifeArc, and law firm Pinsent Masons have published the key lessons from a March 2021 seminar aimed at supporting charities, researchers and funders researching new uses for existing medicines. LAM Action trustee Jo Pisani is also a trustee of LifeArc, and their fascinating report includes a case study on the use of Rapamycin to treat women with LAM, featuring LAM Action Treasurer Sarah Sharples. To read or to download the case study on LAM please click here. To read the LifeArc article and to download a copy of the whole report please click here.