June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians to optimise therapies and find a cure for LAM.
Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May.
Team Johnson – Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater
Simon Fairbrother 
Jo Pisani 
Kev Jones and Lisa Cooper 
All these riders covered 100 miles
and Andrew Barham completed the 60 mile route 
We really appreciate all that they did in training, fundraising and the event itself.
Here are their fundraising pages:
https://2023ridelondon.enthuse.com/pf/simon-johnson
https://2023ridelondon.enthuse.com/pf/naomi-johnson
https://2023ridelondon.enthuse.com/pf/alex-slater
https://2023ridelondon.enthuse.com/pf/oscar-mahony
https://www.justgiving.com/fundraising/lisacooperlamaction
https://2023ridelondon.enthuse.com/pf/simon-fairbrother
https://www.justgiving.com/fundraising/jo-pisani8
https://justgiving.com/fundraising/andrewbarham2
The spring edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Spring 2023 Mobile Device Friendly
Or to print: LAMPost Spring 2023 Print Version
Happy reading and best wishes from the LAMPost team!
LAM Action congratulates Dr Suzanne Miller, a Senior Research Fellow working in Professor Simon Johnson’s lab, on being named the British Thoracic Society’s Early Career Investigator of the Year for her work in LAM. Dr Miller was one of six finalists from a field of 63. This prestigious prize is highly competitive and awarded by the British Thoracic Society (BTS) to the “very best basic, translational or clinical research performed in the UK respiratory community by early career investigators.” The BTS awards the prize based on the “quality and content of the research performed, the quality of the abstract submitted and in short-listed candidates, the quality of the oral presentation given at the Early Career Investigators Symposium at the BTS Winter Meeting.”
We are also pleased to report that Dr Miller, along with Dr Debbie Clements and Dr Roya Babaei-Jadidi, who also work in Professor Johnson’s lab, presented their work in LAM over the course of three talks at the November 2022 BTS Winter Meeting in London. The U.S. LAM Foundation funded the work presented by Dr. Miller, and LAM Action and the Medical Research Council funded the work presented by Drs Clements and Babaei-Jadidi. We are thrilled that their important research into LAM was highlighted at such a prestigious event.
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice based around the number 25 and fundraise or donate to support LAM Action. The 25 Challenge is open to all ages and the ideas and options are endless! Whether you run for 25 miles or just walk 25 times round your garden, juggle for 25 minutes or play the piano for 2.5 hours, bake 25 cupcakes or sit in icy water for 25 seconds – your support for LAM Action will be invaluable. To fundraise for LAM Action, please click here www.justgiving.com/lamaction or donate directly here. Please send news and pictures of your 25 Challenge events to david.mercer@office.lamaction.org.