Oct 16, 2024 | Events, Fundraising
It’s never too early to start thinking about Christmas, so please support our fundraising for LAM research this Christmas by purchasing your cards from LAM Action.
Printed on high-quality board, the cards come in packs of 10 and cost £4.25 per pack + postage. All cards are 14 cm x 14 cm and bear the message ‘With Best Wishes for Christmas and the New Year’. To order please download the order form which suits you best:
The order form to print at home and fill in by hand and then send via post can be found here: Xmas card order form 2024 PRINT
Alternatively you can complete another form electronically and email it in by clicking here: Xmas card order form 2024 EMAIL
Many thanks for your support!
Apr 29, 2024 | Events, LAM News, Meetings
LAM Action’s Annual Meeting will be held in Birmingham on Saturday, 8 June, at the Macdonald Burlington Hotel. This is our first in-person meeting since 2019 and offers those with LAM and their families the chance to meet one another and hear about exciting research and other developments. We have a great programme with something for everyone and we hope to see lots of you there. For more information and to complete your booking form please see here LAM Action Annual Meeting 2024 Booking Form. Please return your completed form to Jill Pateman at jill.pateman@office.lamaction.org.
Jun 1, 2023 | Events, Fundraising, LAM News
Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May.
Team Johnson – Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater
Simon Fairbrother 
Jo Pisani 
Kev Jones and Lisa Cooper 
All these riders covered 100 miles
and Andrew Barham completed the 60 mile route 
We really appreciate all that they did in training, fundraising and the event itself.
Here are their fundraising pages:
https://2023ridelondon.enthuse.com/pf/simon-johnson
https://2023ridelondon.enthuse.com/pf/naomi-johnson
https://2023ridelondon.enthuse.com/pf/alex-slater
https://2023ridelondon.enthuse.com/pf/oscar-mahony
https://www.justgiving.com/fundraising/lisacooperlamaction
https://2023ridelondon.enthuse.com/pf/simon-fairbrother
https://www.justgiving.com/fundraising/jo-pisani8
https://justgiving.com/fundraising/andrewbarham2
Jun 12, 2022 | Events, LAM News, Meetings
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
May 21, 2022 | Events, Fundraising, LAM News
This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice based around the number 25 and fundraise or donate to support LAM Action. The 25 Challenge is open to all ages and the ideas and options are endless! Whether you run for 25 miles or just walk 25 times round your garden, juggle for 25 minutes or play the piano for 2.5 hours, bake 25 cupcakes or sit in icy water for 25 seconds – your support for LAM Action will be invaluable. To fundraise for LAM Action, please click here www.justgiving.com/lamaction or donate directly here. Please send news and pictures of your 25 Challenge events to david.mercer@office.lamaction.org.
Mar 2, 2022 | Events, Meetings
The next virtual get-together for the Lavender Group (those with LAM born before 1960) will be on Thursday 17 March, from 10:30 – 12:00 GMT. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 15 March and she will send you the Zoom link.
