Events

LAM Action Christmas Cards 2019

It will be here before you know it! Support our fundraising for LAM research this Christmas by purchasing your cards from LAM Action. Printed on high-quality board, the cards come in packs of 10 and cost £3.75 per pack + postage. All cards are 14 cm x 14 cm and bear the message ‘With Best […]

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2019 London Marathon, Sunday April 28th

Alice Walker will need no introduction to anyone who has been following our Facebook page as she has taken part in several fundraisers already for LAM Action, including the Great North Swim and the Great North Run. Alice also recently appeared on BBC Radio Nottingham alongside Prof. Simon Johnson, talking about her fundraising for the […]

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The Grand Masquerade Ball

The Grand Masquerade Ball will be held on Saturday March 14th 2020 at The Old Swan Hotel in Harrogate, in aid of LAM Action and Harrogate District Hospital Cardiology Department. This promises to be a fantastic evening and will raise some much needed funds for two charities very close to the organiser Chelsea Ashman’s heart. […]

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Drug trial to assess a new inhaled treatment for women with LAM

A new study is planned to investigate a possible inhaled treatment, called LAM-001 for women with LAM. The study is planned to begin very soon and will be conducted at sites in Nottingham, Manchester and London. Women aged between 18 and 70 years with LAM, who are not being treated with sirolimus (also called rapamycin), may be […]

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ELF Patient Priorities Website

The European Lung Foundation’s new LAM Patient Priorities website is now live! www.europeanlunginfo.org/lam Some of the key features on the site are: Information about LAM – trusted information developed with LAM health professionals and women with LAM. Support in your language: LAM factsheet to download in 9 languages. Map of LAM patient organisations in Europe […]

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Calling all superheroes!

Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fundraising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your help […]

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Take a Closer Look at LAM Action

Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!

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An inspirational new video: Living with LAM

LAM affects women differently, from their reaction to the diagnosis to the progression of the disease.  We have produced this video, in which several women share their own personal thoughts and feelings about having LAM.   Thank you to everybody who took part and to David Mercer for the production.

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Simon Johnson receives LAM Foundation Award for Scientific Advancement

Professor Simon Johnson was presented with the LAM Foundation Award for Scientific Advancement at the LAMposium in Chicago last night (March 28th). The award was presented by Frank McCormack who also summarised and acknowledged Simon’s work and achievements in the world of LAM over the past 15 years and how much that work was valued […]

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RareConnect announces launch of LAM community

RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]

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