About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

See you at our Annual Meeting, 8 June!

See you at our Annual Meeting, 8 June!

LAM Action's Annual Meeting will be held in Birmingham on Saturday, 8 June, at the Macdonald Burlington Hotel. This is our first in-person meeting since 2019 and offers those with LAM and their families the chance to meet one another and hear about exciting research and other developments. We have a great programme with something for everyone and...

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Spring 2024 LAMPost

Spring 2024 LAMPost

The spring edition of LAMPost is now available to download - big thanks to all who contributed! Download the style that suits you, to read on your phone: LAMPost Spring 2024 Mobile Device Friendly Or to print: LAMPost Spring 2024 Print Version Happy reading and best wishes from the LAMPost team!

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Winter 2023 LAMPost

Winter 2023 LAMPost

The winter edition of LAMPost is now available to download - big thanks to all who contributed and it is a real Christmas cracker! Download the style that suits you, to read on your phone: LAMPost Winter 2023 Mobile Device Friendly Or to print: LAMPost Winter 2023 Print Version Happy reading and best wishes for a wonderful Christmas from the...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.