Find out more about LAM
Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.
Find out what help is available
As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.
Recent NEWS
Our Annual Meeting is 10 June
LAM Action's annual meeting will be an online event on Saturday, 10 June from 10:00 to about 14:00 (BST). Our formal 'virtual' AGM will start at 10:00 (BST). Even if you are not a member of LAM Action, we encourage you to attend the AGM to hear about LAM Action’s activities, achievements and financial results for 2022. Following the AGM, we will...
Ride London 28th May 2023
Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May. Team Johnson - Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater Simon Fairbrother Jo Pisani Kev Jones and Lisa Cooper All these riders covered 100 miles and Andrew Barham completed the 60 mile...
Jo’s story
Jo was diagnosed with LAM in 2017, in her early fifties. She maintains an active lifestyle and is cared for by the team at the National Centre for LAM, in Nottingham.
GET INVOLVED
How can you help us?
LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.
