About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Watch LAM Action’s 4th Virtual Meeting

Watch LAM Action’s 4th Virtual Meeting

LAM Action held its fourth Patients' Meeting virtually on 10th June 2023.  The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the...

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June is Worldwide LAM Awareness Month

June is Worldwide LAM Awareness Month

June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians...

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Ride London 28th May 2023

Ride London 28th May 2023

Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May. Team Johnson - Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater Simon Fairbrother Jo Pisani Kev Jones and Lisa Cooper All these riders covered 100 miles and Andrew Barham completed the 60 mile...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.