About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

LAM Action Virtual Meeting celebrates 25 years

LAM Action Virtual Meeting celebrates 25 years

LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022.  The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was...

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LAM Factsheet

With huge thanks to Gill Hollis, Professor Simon Johnson and Professor Emeritus Anne Tattersfield, we have updated our factsheet on LAM. Please click here to read or download a copy.

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Leanne’s story

Leanne’s story

Leanne was diagnosed with LAM in 2013 and since that time has married and had three children. She talks about her experience and some of the challenges she has faced.I was diagnosed with LAM on Valentine’s Day 2013 when I suffered a double lung collapse whilst visiting a relative at the Queen Elizabeth Hospital in Birmingham. I had suffered...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.