About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

READ MORE>>

Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

READ MORE>>

Recent NEWS

Annual Meeting 11 June 2022

Annual Meeting 11 June 2022

LAM Action's annual meeting will be held virtually on Saturday, 11 June 2022. We will kick-off with our formal AGM at 10 am, followed by what promises to be an extra special meeting of presentations and celebrations. This year marks LAM Action's 25th Anniversary, and our meeting will highlight the tremendous progress made in LAM research,...

read more
Lavender Group (virtual) get-together

Lavender Group (virtual) get-together

The next virtual get-together for the Lavender Group (those with LAM born before 1960) will be on Tuesday, 14 June, from 18:00 – 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 7 June and she will send you the Zoom link.

read more
2022 Spring Edition of LAMPost

2022 Spring Edition of LAMPost

  The latest edition of LAMPost is filled with interesting reports and news. It has pieces on Joan Mensor - Clowning Around for LAM Action; the International Survey of COVID-19 in Women with LAM; the launch of the 25 Challenge for May and new trustee, Harriet Saunders .  Download the style that suits you,  to read on your phone  LAMPost...

read more

GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.