About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Jade Group (virtual) get-together

Jade Group (virtual) get-together

The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 - 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.  

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Help us Celebrate with LAM Action’s 25 Challenge

This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice...

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Annual Meeting 11 June 2022

Annual Meeting 11 June 2022

LAM Action's annual meeting will be held virtually on Saturday, 11 June 2022. We will kick-off with our formal AGM at 10 am, followed by what promises to be an extra special meeting of presentations and celebrations. This year marks LAM Action's 25th Anniversary, and our meeting will highlight the tremendous progress made in LAM research,...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.