About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

READ MORE>>

Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

READ MORE>>

Recent NEWS

Harriet’s story

Harriet’s story

Harriet has only recently discovered that she has LAM and talks frankly about the experiences that led up to her diagnosis and how a visit to a LAM Action meeting helped her to come to terms with the disease. 

read more
Leanne’s story

Leanne’s story

Leanne was diagnosed with LAM in 2013 and since that time has married and had three children. She talks about her experience and some of the challenges she has faced.I was diagnosed with LAM on Valentine’s Day 2013 when I suffered a double lung collapse whilst visiting a relative at the Queen Elizabeth Hospital in Birmingham. I had suffered...

read more
London Marathon – 2 October 2022

London Marathon – 2 October 2022

LAM Action still has some charity places for the London Marathon 2022, which is scheduled for Sunday 2nd October.  Runners must aim to raise £2000 for the charity and in return they will receive a LAM Action running vest, support with training, fundraising and PR and be cheered on by supporters on the route and at the finish. If you are...

read more

GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.