About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

LAM Action Virtual Meeting celebrates 25 years

LAM Action Virtual Meeting celebrates 25 years

LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022.  The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was...

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Jade Group (virtual) get-together

Jade Group (virtual) get-together

The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Monday, 27 June, from 18:00 - 19:30 BST. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 27 June and she will send you the Zoom link.  

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Help us Celebrate with LAM Action’s 25 Challenge

This year LAM Action celebrates 25 years of supporting people with LAM and raising funds for research. In that time the charity has raised over £1.5 million and funded a full-time researcher along with PhD students and clinical trials. For our 25 Challenge, we ask that you, your families and your friends take part in an activity of your choice...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.