About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

See You at our Annual Meeting, 7 June 2025!

See You at our Annual Meeting, 7 June 2025!

LAM Action's 2025 annual meeting will be on Saturday, 7 June, at the Leonardo Hotel London Watford. We will hear about LAM Action's activities over the last year, get practical tips and advice about living with LAM and learn about ongoing research. The meeting is for anyone with LAM, as well as their family and friends. It offers a great way of...

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Winter 2024 LAMPost

Winter 2024 LAMPost

The winter edition of LAMPost is now available to download - big thanks to all who contributed! Download the style that suits you, to read on your phone: LAMPost Winter 2024 Mobile Device Friendly Or to print: LAMPost Winter 2024 Print Version Happy reading and best wishes for a Merry Christmas from the LAMPost team!

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.