About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Winter 2022 LAMPost

Winter 2022 LAMPost

The winter edition of LAMPost is now available to download, with lots of articles and info that you won’t want to miss! Download the style that suits you, to read on your phone: LAMPost Winter 2022 Mobile Device Friendly or to print: LAMPost Winter 2022 Print Version Happy reading and a very merry Christmas from the LAMPost team!

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Congratulations to our LAM Researchers

Congratulations to our LAM Researchers

LAM Action congratulates Dr Suzanne Miller, a Senior Research Fellow working in Professor Simon Johnson's lab, on being named the British Thoracic Society's Early Career Investigator of the Year for her work in LAM. Dr Miller was one of six finalists from a field of 63. This prestigious prize is highly competitive and awarded by the British...

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Harriet’s story

Harriet’s story

Harriet has only recently discovered that she has LAM and talks frankly about the experiences that led up to her diagnosis and how a visit to a LAM Action meeting helped her to come to terms with the disease. 

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.