About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.


Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.


Recent NEWS

Ride London is back for 2022!

Ride London is back for 2022!

The world's biggest cycling event is happening once more -  on 29th May 2022.   This time the 100 mile route will head out from London to the leafy lanes of Essex before returning to finish in front of the iconic landmarks of the city. If you are interested or know of someone who would like to take part please complete the application form and...

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LAM and Mental Health Long Term

Consultant clinical psychologist Dr Victoria Hill looks at the long term mental health issues that may arise from a LAM diagnosis and suggests some strategies to cope with them. This is the second of two talks, produced by LAM Action, that contain input from and aim to support the LAM community in the UK.  ...

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Living with LAM

LAM affects women differently, from their reaction to the diagnosis to the progression of the disease.  Here are some different accounts of Living with LAM - the video was created in 2016.

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How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.