May 10, 2025 | LAM News, Meetings
LAM Action held its first in-person Patients’ Meeting for 5 years in Birmingham on 8th June 2024. The full day event included research updates from Prof Simon Johnson and Dr Debbie Clements, an overview of the LifeArc research project which will involve LAM patients, a look at exercise and LAM, a session about breathing techniques and another about oxygen devices for LAM.
You can watch the recording of the event here. There are chapters marked within the recording so that you can move forward to view the various talks, detailed in the agenda below.
AGENDA
00:00:00 LAM Basics – Prof Simon Johnson
00:28:00 Formal LAM Action AGM
00:51:20 ‘New ways of treating LAM’ – Dr Debbie Clements
01:16:00 LAM Groups around the world – Gill Hollis
01:36:00 The LifeArc research project – Jo Pisani
02:12:00 LAM Centre Team – Q & A Session
02:22:30 Home based Exercise and LAM – Mary Beth Brown
02:47:23 Fitness for LAM – Patient views
03:04:00 Breathing exercises for LAM – Rick Porter
03:16:22 Supplemental oxygen and fitness – Hollie Gorrensweigh
Feb 16, 2025 | Events, LAM News, Meetings
LAM Action’s 2025 annual meeting will be on Saturday, 7 June, at the Leonardo Hotel London Watford. We will hear about LAM Action’s activities over the last year, get practical tips and advice about living with LAM and learn about ongoing research. The meeting is for anyone with LAM, as well as their family and friends. It offers a great way of catching up with and meeting others with LAM, as well as those who care for them. For more information and to complete your booking form please see here Annual Meeting 2025 Flyer. Please return your completed registration form to Jill Pateman.
Feb 16, 2025 | LAM News, Meetings
The next get-together of the London and Southeast LAM group will be on Saturday, 22 March 2025. If you would like more information, please contact Jill Pateman
Apr 29, 2024 | Events, LAM News, Meetings
LAM Action’s Annual Meeting will be held in Birmingham on Saturday, 8 June, at the Macdonald Burlington Hotel. This is our first in-person meeting since 2019 and offers those with LAM and their families the chance to meet one another and hear about exciting research and other developments. We have a great programme with something for everyone and we hope to see lots of you there. For more information and to complete your booking form please see here LAM Action Annual Meeting 2024 Booking Form. Please return your completed form to Jill Pateman at jill.pateman@office.lamaction.org.
Jun 21, 2023 | LAM News, Meetings
LAM Action held its fourth Patients’ Meeting virtually on 10th June 2023. The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the Perelman School of Medicine at the University of Pennsylvania. There are chapters marked within the recording so that you can move forward to view different talks. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Medical management of LAM in the UK’
11.10 Dr Caroline Hill – ‘Diet considerations for those with LAM’
11.50 Personal stories of living with LAM
12.05 Dr Debbie Clements – ‘New ways of treating LAM’
13.00 Dr Karen Morton – ‘Let’s talk about the menopause’
13.30 The Lucy Falconer Talk – Dr Vera Krimskaya – ‘LAM Research: Past, present and future’
Jun 12, 2022 | Events, LAM News, Meetings
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
