Apr 29, 2024 | Events, LAM News, Meetings
LAM Action’s Annual Meeting will be held in Birmingham on Saturday, 8 June, at the Macdonald Burlington Hotel. This is our first in-person meeting since 2019 and offers those with LAM and their families the chance to meet one another and hear about exciting research and other developments. We have a great programme with something for everyone and we hope to see lots of you there. For more information and to complete your booking form please see here LAM Action Annual Meeting 2024 Booking Form. Please return your completed form to Jill Pateman at jill.pateman@office.lamaction.org.
Jun 21, 2023 | LAM News, Meetings
LAM Action held its fourth Patients’ Meeting virtually on 10th June 2023. The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the Perelman School of Medicine at the University of Pennsylvania. There are chapters marked within the recording so that you can move forward to view different talks. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Medical management of LAM in the UK’
11.10 Dr Caroline Hill – ‘Diet considerations for those with LAM’
11.50 Personal stories of living with LAM
12.05 Dr Debbie Clements – ‘New ways of treating LAM’
13.00 Dr Karen Morton – ‘Let’s talk about the menopause’
13.30 The Lucy Falconer Talk – Dr Vera Krimskaya – ‘LAM Research: Past, present and future’
Jun 12, 2022 | Events, LAM News, Meetings
LAM Action celebrated 25 years with a really positive virtual meeting on 11th June 2022. The 3 hour event included a history of LAM from Prof Anne Tattersfield OBE, research updates from Prof Simon Johnson and Dr Debbie Clements, a tour of the Nottingham research lab, messages from LAM Groups around the world and the Lucy Falconer Talk was presented by Dr Lisa Henske, Director of the Center for LAM Research and Clinical Care, Brigham and Women’s Hospital, Harvard Medical School, Boston. There are chapters marked within the recording so that you can move forward to view different talks and the event starts about 9 minutes in. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Clinical trials for LAM: Moving medicines from the lab to the clinic’
11.10 The History of LAM Action – Prof. Anne Tattersfield looks back over 25 years
11.50 A video tour of the LAM Research Lab in Nottingham
12.50 Dr Debbie Clements – ‘An update from the lab’
12.40 Messages from LAM groups around the world
13.15 The Lucy Falconer Talk – Dr Lisa Henske – ‘LAM Research and Clinical Care: Past, present and future’
Mar 2, 2022 | Events, Meetings
The next virtual get-together for the Lavender Group (those with LAM born before 1960) will be on Thursday 17 March, from 10:30 – 12:00 GMT. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 15 March and she will send you the Zoom link.
Mar 1, 2022 | Events, Meetings
The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Tuesday 12 April, from 18:00 – 19:30. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 5 April and she will send you the Zoom link.
Feb 11, 2022 | Events, Meetings
The next virtual get-together for the Green Group (those with LAM born 1980 and after) will be on Thursday 4 April, from 18:00 – 19:30 GMT. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 29 March and she will send you the Zoom link.
