The summer edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Summer 2023 Mobile Device Friendly
Or to print: LAMPost Summer 2023 Print Version
Happy reading and best wishes from the LAMPost team!
LAM Action held its fourth Patients’ Meeting virtually on 10th June 2023. The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the Perelman School of Medicine at the University of Pennsylvania. There are chapters marked within the recording so that you can move forward to view different talks. You can watch the recording of the event here.
AGENDA
10.40 Prof. Simon Johnson – ‘Medical management of LAM in the UK’
11.10 Dr Caroline Hill – ‘Diet considerations for those with LAM’
11.50 Personal stories of living with LAM
12.05 Dr Debbie Clements – ‘New ways of treating LAM’
13.00 Dr Karen Morton – ‘Let’s talk about the menopause’
13.30 The Lucy Falconer Talk – Dr Vera Krimskaya – ‘LAM Research: Past, present and future’
June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians to optimise therapies and find a cure for LAM.
Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May.
Team Johnson – Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater
Simon Fairbrother 
Jo Pisani 
Kev Jones and Lisa Cooper 
All these riders covered 100 miles
and Andrew Barham completed the 60 mile route 
We really appreciate all that they did in training, fundraising and the event itself.
Here are their fundraising pages:
https://2023ridelondon.enthuse.com/pf/simon-johnson
https://2023ridelondon.enthuse.com/pf/naomi-johnson
https://2023ridelondon.enthuse.com/pf/alex-slater
https://2023ridelondon.enthuse.com/pf/oscar-mahony
https://www.justgiving.com/fundraising/lisacooperlamaction
https://2023ridelondon.enthuse.com/pf/simon-fairbrother
https://www.justgiving.com/fundraising/jo-pisani8
https://justgiving.com/fundraising/andrewbarham2
The spring edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Spring 2023 Mobile Device Friendly
Or to print: LAMPost Spring 2023 Print Version
Happy reading and best wishes from the LAMPost team!
LAM Action congratulates Dr Suzanne Miller, a Senior Research Fellow working in Professor Simon Johnson’s lab, on being named the British Thoracic Society’s Early Career Investigator of the Year for her work in LAM. Dr Miller was one of six finalists from a field of 63. This prestigious prize is highly competitive and awarded by the British Thoracic Society (BTS) to the “very best basic, translational or clinical research performed in the UK respiratory community by early career investigators.” The BTS awards the prize based on the “quality and content of the research performed, the quality of the abstract submitted and in short-listed candidates, the quality of the oral presentation given at the Early Career Investigators Symposium at the BTS Winter Meeting.”
We are also pleased to report that Dr Miller, along with Dr Debbie Clements and Dr Roya Babaei-Jadidi, who also work in Professor Johnson’s lab, presented their work in LAM over the course of three talks at the November 2022 BTS Winter Meeting in London. The U.S. LAM Foundation funded the work presented by Dr. Miller, and LAM Action and the Medical Research Council funded the work presented by Drs Clements and Babaei-Jadidi. We are thrilled that their important research into LAM was highlighted at such a prestigious event.