Watch LAM Action’s 4th Virtual Meeting

Watch LAM Action’s 4th Virtual Meeting

LAM Action held its fourth Patients’ Meeting virtually on 10th June 2023.  The 3 and a half hour event included research updates from Prof Simon Johnson and Dr Debbie Clements, a look at nutrition and LAM, a discussion about dealing with the menopause if you have LAM and the Lucy Falconer Talk was presented by Dr Vera Krymskaya, Professor at the Perelman School of Medicine at the University of Pennsylvania. There are chapters marked within the recording so that you can move forward to view different talks.  You can watch the recording of the event here.

AGENDA

10.40 Prof. Simon Johnson – ‘Medical management of LAM in the UK’
11.10 Dr Caroline Hill – ‘Diet considerations for those with LAM’
11.50 Personal stories of living with LAM
12.05 Dr Debbie Clements – ‘New ways of treating LAM’
13.00 Dr Karen Morton – ‘Let’s talk about the menopause’
13.30 The Lucy Falconer Talk – Dr Vera Krimskaya – ‘LAM Research: Past, present and future’

June is Worldwide LAM Awareness Month

June is Worldwide LAM Awareness Month

June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians to optimise therapies and find a cure for LAM.

Ride London 28th May 2023

Ride London 28th May 2023

Well done and a very big thank you to all 9 LAM Action riders who took part in Ride London on Sunday 28th May.

Team Johnson – Professor Simon Johnson and his daughter Naomi, and friends Oscar Mahony and Alex Slater
Simon Fairbrother Jo Pisani
Kev Jones and Lisa Cooper All these riders covered 100 miles
and Andrew Barham completed the 60 mile route
We really appreciate all that they did in training, fundraising and the event itself.
Here are their fundraising pages:
https://2023ridelondon.enthuse.com/pf/simon-johnson
https://2023ridelondon.enthuse.com/pf/naomi-johnson
https://2023ridelondon.enthuse.com/pf/alex-slater
https://2023ridelondon.enthuse.com/pf/oscar-mahony
https://www.justgiving.com/fundraising/lisacooperlamaction
https://2023ridelondon.enthuse.com/pf/simon-fairbrother
https://www.justgiving.com/fundraising/jo-pisani8
https://justgiving.com/fundraising/andrewbarham2