
Patient Engagement
The unique patient engagement at the heart of the LifeArc Rare Respiratory Disease (RRD) Centre is discussed in a press release issued on behalf of LAM Action. To read a copy of the press release, please click here.
The unique patient engagement at the heart of the LifeArc Rare Respiratory Disease (RRD) Centre is discussed in a press release issued on behalf of LAM Action. To read a copy of the press release, please click here.
As part of the LifeArc research initiative Prof. Simon Johnson’s team and LAM Action are involved in one of four LifeArc Translational Centres for Rare Diseases: the LifeArc Centre for Rare Respiratory Diseases. Here’s a fascinating video that explains how the LifeArc Centres work: https://www.lifearc.org/project/lifearc-translational-centres-for-rare-diseases/
LAM Action’s 2025 annual meeting will be on Saturday, 7 June, at the Leonardo Hotel London Watford. We will hear about LAM Action’s activities over the last year, get practical tips and advice about living with LAM and learn about ongoing research. The meeting is for anyone with LAM, as well as their family and friends. It offers a great way of catching up with and meeting others with LAM, as well as those who care for them. For more information and to complete your booking form please see here Annual Meeting 2025 Flyer. Please return your completed registration form to Jill Pateman.
The next get-together of the London and Southeast LAM group will be on Saturday, 22 March 2025. If you would like more information, please contact Jill Pateman
The winter edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Winter 2024 Mobile Device Friendly
Or to print: LAMPost Winter 2024 Print Version
Happy reading and best wishes for a Merry Christmas from the LAMPost team!
The summer edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Summer 2024 Mobile Device Friendly
Or to print: LAMPost Summer 2024 Print Version
Happy reading and best wishes from the LAMPost team!