May 10, 2025 | LAM News, Meetings
LAM Action held its first in-person Patients’ Meeting for 5 years in Birmingham on 8th June 2024. The full day event included research updates from Prof Simon Johnson and Dr Debbie Clements, an overview of the LifeArc research project which will involve LAM patients, a look at exercise and LAM, a session about breathing techniques and another about oxygen devices for LAM.
You can watch the recording of the event here. There are chapters marked within the recording so that you can move forward to view the various talks, detailed in the agenda below.
AGENDA
00:00:00 LAM Basics – Prof Simon Johnson
00:28:00 Formal LAM Action AGM
00:51:20 ‘New ways of treating LAM’ – Dr Debbie Clements
01:16:00 LAM Groups around the world – Gill Hollis
01:36:00 The LifeArc research project – Jo Pisani
02:12:00 LAM Centre Team – Q & A Session
02:22:30 Home based Exercise and LAM – Mary Beth Brown
02:47:23 Fitness for LAM – Patient views
03:04:00 Breathing exercises for LAM – Rick Porter
03:16:22 Supplemental oxygen and fitness – Hollie Gorrensweigh
Apr 17, 2025 | LAM News, LAMPost
The spring edition of LAMPost is now available to download – big thanks to all who contributed!
Download the style that suits you, to read on your phone: LAMPost Spring 2025 Mobile Device Friendly
Or to print: LAMPost Spring 2025 Print Version
Happy reading and best wishes for Easter from LAM Action.
Feb 28, 2025 | LAM News
The unique patient engagement at the heart of the LifeArc Rare Respiratory Disease (RRD) Centre is discussed in a press release issued on behalf of LAM Action. To read a copy of the press release, please click here.
Feb 17, 2025 | LAM News
As part of the LifeArc research initiative Prof. Simon Johnson’s team and LAM Action are involved in one of four LifeArc Translational Centres for Rare Diseases: the LifeArc Centre for Rare Respiratory Diseases. Here’s a fascinating video that explains how the LifeArc Centres work: https://www.lifearc.org/project/lifearc-translational-centres-for-rare-diseases/
Feb 16, 2025 | Events, LAM News, Meetings
LAM Action’s 2025 annual meeting will be on Saturday, 7 June, at the Leonardo Hotel London Watford. We will hear about LAM Action’s activities over the last year, get practical tips and advice about living with LAM and learn about ongoing research. The meeting is for anyone with LAM, as well as their family and friends. It offers a great way of catching up with and meeting others with LAM, as well as those who care for them. For more information and to complete your booking form please see here Annual Meeting 2025 Flyer. Please return your completed registration form to Jill Pateman.
Feb 16, 2025 | LAM News, Meetings
The next get-together of the London and Southeast LAM group will be on Saturday, 22 March 2025. If you would like more information, please contact Jill Pateman
