LAM Action held its first in-person Patients’ Meeting for 5 years in Birmingham on 8th June 2024. The full day event included research updates from Prof Simon Johnson and Dr Debbie Clements, an overview of the LifeArc research project which will involve LAM patients, a look at exercise and LAM, a session about breathing techniques and another about oxygen devices for LAM.
You can watch the recording of the event here. There are chapters marked within the recording so that you can move forward to view the various talks, detailed in the agenda below.
AGENDA
00:00:00 LAM Basics – Prof Simon Johnson
00:28:00 Formal LAM Action AGM
00:51:20 ‘New ways of treating LAM’ – Dr Debbie Clements
01:16:00 LAM Groups around the world – Gill Hollis
01:36:00 The LifeArc research project – Jo Pisani
02:12:00 LAM Centre Team – Q & A Session
02:22:30 Home based Exercise and LAM – Mary Beth Brown
02:47:23 Fitness for LAM – Patient views
03:04:00 Breathing exercises for LAM – Rick Porter
03:16:22 Supplemental oxygen and fitness – Hollie Gorrensweigh