- About LAM
- About LAM Action
- For Medical Professionals
- For Patients & Their Families
- Get Involved
Preliminary agenda now available for the 2015 Annual Meeting on June 6th in Nottingham. Click here to see more
Please click here for details about the benefits of joining LAM Action - and why we would value your membership
LAM Action is the UK charity for those with Lymphangioleiomyomatosis (LAM), their families and doctors caring for them.
LAM is a rare lung disease that occurs almost exclusively in women. For every million women approximately 7 will have LAM. We are aware of approximately 200 women in the United Kingdom who have LAM and around 10 new cases are diagnosed each year. It appears to occur worldwide and to be equally rare in other countries.
LAM predominantly affects the lungs, where it causes excessive growth of smooth muscle cells which progressively destroy lung tissue and erode lung function. Although research is ongoing, currently there is no cure for LAM and effective treatment is limited. For some women with LAM lung transplantation is their only means of survival.