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LAM Action is the UK charity for those with Lymphangioleiomyomatosis (LAM), their families and doctors caring for them.
LAM is a rare lung disease that occurs almost exclusively in women. For every million women approximately 7 will have LAM. We are aware of approximately 350 women in the United Kingdom who have LAM and around 25 new cases are diagnosed each year. It appears to occur worldwide and to be equally rare in other countries.
LAM predominantly affects the lungs, where it causes excessive growth of smooth muscle cells which progressively destroy lung tissue and erode lung function. Although research is ongoing, currently there is no cure for LAM and effective treatment is limited. For some women with LAM lung transplantation is their only means of survival.