About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

LifeArc Centre for Rare Respiratory Diseases

LifeArc Centre for Rare Respiratory Diseases

As part of the LifeArc research initiative Prof. Simon Johnson’s team and LAM Action are involved in one of four LifeArc Translational Centres for Rare Diseases: the LifeArc Centre for Rare Respiratory Diseases.  Here's a fascinating video that explains how the LifeArc Centres...

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Annual Meeting 7 June 2025

Please save the date for our 2025 annual meeting! We will be meeting on Saturday, 7 June, at the Leonardo Hotel London Watford. We will hear about LAM Action's activities over the last year, get practical tips and advice about living with LAM and learn about ongoing research. The meeting is for anyone with LAM, as well as their family and...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.