About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

READ MORE>>

Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

READ MORE>>

Recent NEWS

LAM Factsheet

With huge thanks to Gill Hollis, Professor Simon Johnson and Professor Emeritus Anne Tattersfield, we have updated our factsheet on LAM. Please click here to read or download a copy.

read more
Leanne’s story

Leanne’s story

Leanne was diagnosed with LAM in 2013 and since that time has married and had three children. She talks about her experience and some of the challenges she has faced.I was diagnosed with LAM on Valentine’s Day 2013 when I suffered a double lung collapse whilst visiting a relative at the Queen Elizabeth Hospital in Birmingham. I had suffered...

read more

LAM and Mental Health Long Term

Consultant clinical psychologist Dr Victoria Hill looks at the long term mental health issues that may arise from a LAM diagnosis and suggests some strategies to cope with them. This is the second of two talks, produced by LAM Action, that contain input from and aim to support the LAM community in the UK.  ...

read more

GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.