About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Green Group (Virtual) Meeting

The next meeting of the Green Group (for people with LAM born in 1980 or later) will take place via Zoom on Monday 10 January 2022, between 6-7:30 pm. If you'd like to join the online chat, please email our LAM Action coordinator, Jill Pateman, no later than Tuesday 4 January and Jill will send you a Zoom link.

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Jade Group Meeting

The next meeting of the Jade Group (for people with LAM born between 1960 and 1980) will be Monday 29 November 2021. Anyone who wants to participate in this online chat should email Jill Pateman no later than Tuesday 23 November.

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.