About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Green Group (virtual) get-together

Green Group (virtual) get-together

The next virtual get-together for the Green Group (those with LAM born 1980 and after) will be on Thursday 4 April, from 18:00 – 19:30 GMT. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 29 March and she will send you the Zoom link.

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Jade Group (virtual) get-together

Jade Group (virtual) get-together

The next virtual get-together for the Jade Group (those with LAM born between 1960 and 1980) will be on Thursday 3 March, from 18:00 - 19:30 GMT. Anyone who would like to participate in this online chat should contact Jill Pateman by Tuesday 1 March and she will send you the Zoom link. 

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Winter LAMPost – out now

Winter LAMPost – out now

The 2021 Winter edition of LAMPost is filled with interesting articles and updates. It has pieces on getting fit for the New Year, Fundraising events for you and your friends and the story of Sally and Ron's Christmas tree field.  Download the style that suits you,  to read on your phone  LAMPost Winter 2021 Mobile Device Friendly  or to print...

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.