About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

Jo’s story

Jo’s story

Jo was diagnosed with LAM in 2017, in her early fifties. She maintains an active lifestyle and is cared for by the team at the National Centre for LAM, in Nottingham.

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Sally’s story

Sally’s story

Sally was diagnosed with LAM when she was in her early fifties. Now in her sixties, she remains active, riding horses and working around her farm.

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Spring 2023 LAMPost

Spring 2023 LAMPost

The spring edition of LAMPost is now available to download - big thanks to all who contributed! Download the style that suits you, to read on your phone: LAMPost Spring 2023 Mobile Device Friendly Or to print: LAMPost Spring 2023 Print Version Happy reading and best wishes from the LAMPost team!

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.