About LAM Action

LAM Action is the UK charity for those with LAM, their families and doctors caring for them.

How We Help

Whether you want to learn more about LAM, meet and talk to others with LAM or support someone with the condition, we can help.

Repurposed Medicines

A report published by the medical research charity LifeArc and law firm Pinsent Masons highlights LAM and the repurposing of the drug sirolimus to treat the disease.

Find out more about LAM

Learn more about lymphangioleiomyomatosis. We give an overview of LAM, its symptoms and how it is diagnosed and treated.

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Find out what help is available

As someone new to LAM, you have probably never known anyone with LAM or even heard of this rare disease. One of our primary aims is to provide support and information to those with LAM and their families.

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Recent NEWS

LAM and Pregnancy

When deciding whether to become pregnant or not, women with LAM often ask about the possible effects of pregnancy on their LAM, and also on the effects of having LAM on their pregnancy and their baby. We have published a flyer that addresses LAM and pregnancy, which we hope you will find helpful. To download a copy of the flyer, please click here.

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LAM and Air Travel

As those with LAM often have concerns about flying, we have published a flyer about air travel, which we hope you will find helpful. To download a copy, please click here.

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GET INVOLVED

How can you help us?

LAM Action is entirely self-supporting and run almost entirely by volunteers. In this section you will learn about the many ways in which you can get involved.