Events

LifeArc publishes expert advice to support work around repurposing medicines

The theme of repurposing medicines for use with other diseases was recently discussed at the LAM Action Annual Meeting. Medical research charity LifeArc, and law firm Pinsent Masons have published the key lessons from a March seminar aimed at supporting charities, researchers and funders researching new uses for existing medicines. LAM Action trustee Jo Pisani […]

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LAM Action Virtual Meeting 2021

Traditionally LAM Action holds a combined AGM and broader Annual Meeting in the month of June. Unfortunately, in light of the pandemic situation, we do not think it is prudent to meet in person this year.  However, it is still possible for us to gather – ‘virtually’ – and so we intend to do so […]

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2021 London Marathon, Sunday 3rd October

LAM Action has a number of charity places up for grabs for anyone who would like to run the London Marathon to raise funds for us.  Due to the ongoing situation with COVID-19 the London Marathon will take place on Sunday October 3rd this year, instead of its usual April date in the calendar. Our […]

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Coronavirus Vaccines and LAM: UPDATED ADVICE

23rd January 2021  Summary COVID-19 can cause severe illness including loss of life and long-term complications. All available vaccines give high levels of protection against severe Corona virus infection. The COVID-19 vaccines appear both safe and effective for the majority of people. It is recommended that women with LAM, including those taking rapamycin, should take […]

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Guidance on shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19

Adapted for people with LAM 24th March 2020 Background and scope of guidance This guidance is for people who are at very high risk of severe illness from coronavirus (COVID-19) because of an underlying health condition, and for their family, friends and carers. It is intended for use in situations where the extremely vulnerable person […]

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General advice on COVID-19 for women with LAM

17th March 2020 There are very few reports worldwide, including in China, of women with LAM becoming infected with COVID-19 and so the following points are based on UK government advice and our best judgement.   Disease risk for women with LAM People with underlying respiratory problems are at higher risk of complications from COVID-19 […]

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Prudential Ride London – Sunday 16th August 2020

Want to ride for our small charity, run by volunteers, to fund vital research into LAM, a very rare lung condition, which only affects women? Ride London-Surrey 100 is a fantastic 100 mile cycle ride starting at the Olympic Park and heading through the Surrey Hills area of outstanding natural beauty before finishing on the […]

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Drug trial to assess a new inhaled treatment for women with LAM

A new study is planned to investigate a possible inhaled treatment, called LAM-001 for women with LAM. The study is planned to begin very soon and will be conducted at sites in Nottingham, Manchester and London. Women aged between 18 and 70 years with LAM, who are not being treated with sirolimus (also called rapamycin), may be […]

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ELF Patient Priorities Website

The European Lung Foundation’s new LAM Patient Priorities website is now live! www.europeanlunginfo.org/lam Some of the key features on the site are: Information about LAM – trusted information developed with LAM health professionals and women with LAM. Support in your language: LAM factsheet to download in 9 languages. Map of LAM patient organisations in Europe […]

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Calling all superheroes!

Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fundraising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your help […]

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