The second purpose of LAM Action is to raise money for research as it is often difficult to obtain money for research into a rare disease. Over the years, LAM Action has raised a considerable amount of money, from a variety of sources. These have included sponsorship from marathons and other sporting events, pub quizzes, employee matching schemes, donations from women’s and church groups, Christmas card sales and generous gifts from friends and relatives.
To date our funds have allowed us to fund a post doctoral research scientist in Nottingham, part fund a treatment trial assessing the efficacy of the antibiotic doxycycline and to employ our part time coordinator, Jan Johnson. Jan is responsible for running the LAM office and is usually the first point of contact for newly diagnosed patients and general LAM based enquiries. She also helps organise the LAM Action annual patients’ meeting and maintains the UK register of LAM patients.
The money has come in very steadily over the years thanks to a lot of excellent work by patients with LAM but we still need more. More details about our fundraising and what we do with the money can be found on our fundraising section.