In January 2010, the European Respiratory Journal published clinical guidelines on LAM.  These comprehensive and practical guidelines, prepared under the auspices of the European Respiratory Society and co-chaired by Nottingham’s Simon Johnson, cover all aspects of the disease from presentation, through diagnosis, to management of the disease.

The primary purpose of the guidelines is as a resource for medical professionals, but LAM Patients should benefit from this initiative.  Guidelines like these are particularly useful for doctors working outside their usual area of expertise; given that LAM is so rare, this is almost always the case with doctors seeing LAM patients for the first time.  If you are a LAM patient, you may want to confirm that your doctor is aware of these guidelines.  If you read them yourself, please bear in mind that they were intended for a medical audience.

ERS TASK FORCE:
S. R. Johnson, J. F. Cordier, R. Lazor, V. Cottin, U. Costabel, S. Harari, M. Reynaud-Gaubert, A. Boehler, M. Brauner, H. Popper, F. Bonetti, C. Kingswood, and the Review Panel of the ERS LAM Task Force
European Respiratory Society guidelines for the diagnosis and management of lymphangioleiomyomatosis