Current News & Events

RareConnect announces launch of LAM community

RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]

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Department of Health UK Strategy for Rare Diseases

The Department of Health has recently published a shared vision for the UK to improve the lives of those with rare diseases. For more details please visit the link where you can download the document or see the copy in our Publications and Downloads section. The work of both LAM Action and the National Centre […]

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We’ve joined Virgin Money Giving

Virgin Money Giving is a way you can donate online. You can also collect donations if you are organising or taking part in an event that people are sponsoring you for. Setting up your own page or making a donation is really easy. Just click on the button below and follow the instructions.  

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