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On Sunday 29th July the streets of London will once again be filled with 30 thousand cyclists as Ride London – Surrey 100, the classic cycle event that grew from the 2012 Olympics, takes to the road again. This year LAM Action has 4 cyclists taking part. David Roberts is a civil servant who works […]
A new study is planned to investigate a possible inhaled treatment, called LAM-001 for women with LAM. The study is planned to begin in April and will be conducted at sites in Nottingham, Manchester and London. Women aged between 18 and 65 years with LAM, who are not being treated with sirolimus (also called rapamycin), […]
Mother of 5 Jeanie Hughes, who works as a staff nurse specialising in respiratory medicine, is swapping her regular Billericay Parkrun for the London Marathon to raise funds for LAM Action in support of her good friend Clair Hemmington. “I’ve always wanted to run in the London Marathon, and have always said I would run […]
The European Lung Foundation’s new LAM Patient Priorities website is now live! www.europeanlunginfo.org/lam Some of the key features on the site are: Information about LAM – trusted information developed with LAM health professionals and women with LAM. Support in your language: LAM factsheet to download in 9 languages. Map of LAM patient organisations in Europe […]
Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fundraising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your help […]
Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!
LAM affects women differently, from their reaction to the diagnosis to the progression of the disease. We have produced this video, in which several women share their own personal thoughts and feelings about having LAM. Thank you to everybody who took part and to David Mercer for the production.
If so we’d love to hear from you! We are always extremely grateful for whatever fundraising our supporters undertake on our behalf, though sometimes we don’t know about it or only find out after the event – which means we can’t always support you as much as we would like. Letting us know your plans […]
Professor Simon Johnson was presented with the LAM Foundation Award for Scientific Advancement at the LAMposium in Chicago last night (March 28th). The award was presented by Frank McCormack who also summarised and acknowledged Simon’s work and achievements in the world of LAM over the past 15 years and how much that work was valued […]
RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]