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Adapted for people with LAM 24th March 2020 Background and scope of guidance This guidance is for people who are at very high risk of severe illness from coronavirus (COVID-19) because of an underlying health condition, and for their family, friends and carers. It is intended for use in situations where the extremely vulnerable person […]
17th March 2020 There are very few reports worldwide, including in China, of women with LAM becoming infected with COVID-19 and so the following points are based on UK government advice and our best judgement. Disease risk for women with LAM People with underlying respiratory problems are at higher risk of complications from COVID-19 […]
Want to ride for our small charity, run by volunteers, to fund vital research into LAM, a very rare lung condition, which only affects women? Ride London-Surrey 100 is a fantastic 100 mile cycle ride starting at the Olympic Park and heading through the Surrey Hills area of outstanding natural beauty before finishing on the […]
Alice Walker will need no introduction to anyone who has been following our Facebook page as she has taken part in several fundraisers already for LAM Action, including the Great North Swim and the Great North Run. Alice also recently appeared on BBC Radio Nottingham alongside Prof. Simon Johnson, talking about her fundraising for the […]
A new study is planned to investigate a possible inhaled treatment, called LAM-001 for women with LAM. The study is planned to begin very soon and will be conducted at sites in Nottingham, Manchester and London. Women aged between 18 and 70 years with LAM, who are not being treated with sirolimus (also called rapamycin), may be […]
The European Lung Foundation’s new LAM Patient Priorities website is now live! www.europeanlunginfo.org/lam Some of the key features on the site are: Information about LAM – trusted information developed with LAM health professionals and women with LAM. Support in your language: LAM factsheet to download in 9 languages. Map of LAM patient organisations in Europe […]
Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fundraising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your help […]
Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!
LAM affects women differently, from their reaction to the diagnosis to the progression of the disease. We have produced this video, in which several women share their own personal thoughts and feelings about having LAM. Thank you to everybody who took part and to David Mercer for the production.
If so we’d love to hear from you! We are always extremely grateful for whatever fundraising our supporters undertake on our behalf, though sometimes we don’t know about it or only find out after the event – which means we can’t always support you as much as we would like. Letting us know your plans […]