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Bandhana ‘Benny’ Jakhu and Sarah Colvin are colleagues of Colin Robey in the tax team at the London Stock Exchange, and they are running in support of Colin’s wife Louise who has LAM. Benny said: “After hearing Louise’s story from Colin and then learning how extremely small a charity LAM Action is, I felt raising […]
Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fund raising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your […]
For the first time ever the LAM Action Annual Meeting will be hitting the road and taking place at the Holiday Inn Birmingham Airport on Saturday June 17th 2017! We have taken this step to encourage as many people as possible to come along and join in – the venue will offer improved transport links […]
Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!
Are you still undecided about whether to come to the LAM Action Annual Meeting on Saturday 11th June in Nottingham? Have a look at this video to find out why you should come. Online booking for the meeting has now closed, but if you want to come along at the last minute, please email […]
LAM affects women differently, from their reaction to the diagnosis to the progression of the disease. We have produced this video, in which several women share their own personal thoughts and feelings about having LAM. Thank you to everybody who took part and to David Mercer for the production.
If so we’d love to hear from you! We are always extremely grateful for whatever fundraising our supporters undertake on our behalf, though sometimes we don’t know about it or only find out after the event – which means we can’t always support you as much as we would like. Letting us know your plans […]
Professor Simon Johnson was presented with the LAM Foundation Award for Scientific Advancement at the LAMposium in Chicago last night (March 28th). The award was presented by Frank McCormack who also summarised and acknowledged Simon’s work and achievements in the world of LAM over the past 15 years and how much that work was valued […]
RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]
The Department of Health has recently published a shared vision for the UK to improve the lives of those with rare diseases. For more details please visit the link where you can download the document or see the copy in our Publications and Downloads section. The work of both LAM Action and the National Centre […]