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Saturday June 9th at Hilton Leeds City Hotel LAM Action are delighted to announce that Sue Sherman, Executive Director of the LAM Foundation, will be addressing the Annual Meeting on June 9th in Leeds. Other agenda items include a session on Mindfulness, the latest research and medical updates, a look back at LAM Action’s past […]
The European Lung Foundation’s new LAM Patient Priorities website is now live! www.europeanlunginfo.org/lam Some of the key features on the site are: Information about LAM – trusted information developed with LAM health professionals and women with LAM. Support in your language: LAM factsheet to download in 9 languages. Map of LAM patient organisations in Europe […]
Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fundraising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your help […]
Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!
LAM affects women differently, from their reaction to the diagnosis to the progression of the disease. We have produced this video, in which several women share their own personal thoughts and feelings about having LAM. Thank you to everybody who took part and to David Mercer for the production.
If so we’d love to hear from you! We are always extremely grateful for whatever fundraising our supporters undertake on our behalf, though sometimes we don’t know about it or only find out after the event – which means we can’t always support you as much as we would like. Letting us know your plans […]
Old editions of LAMPost are available in two places (depending on when they were published) The more recent (Summer 2011 onwards, with the exception of Autumn 2011) can be found here. Older ones (Spring 00 to Spring 2011 and also Autumn 2011) can be found here https://www.dropbox.com/sh/v1o3gr9houklqxe/Sea2lemvZz We would like to produce a searchable index to […]
Professor Simon Johnson was presented with the LAM Foundation Award for Scientific Advancement at the LAMposium in Chicago last night (March 28th). The award was presented by Frank McCormack who also summarised and acknowledged Simon’s work and achievements in the world of LAM over the past 15 years and how much that work was valued […]
RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]
The Department of Health has recently published a shared vision for the UK to improve the lives of those with rare diseases. For more details please visit the link where you can download the document or see the copy in our Publications and Downloads section. The work of both LAM Action and the National Centre […]