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28th February 2017 marks the 10th international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based around the slogan ‘With research, possibilities are limitless’. Rare disease research is crucial to providing patients with the answers and […]
Every year LAM Action aims to raise £75,000 to support women with LAM and their families and to continue to fund much needed research into the condition. Fund raising through sponsored events is a central part of achieving this goal and we now offer places in more events than ever before, but we need your […]
For the first time ever the LAM Action Annual Meeting will be hitting the road and taking place at the Holiday Inn Birmingham Airport on Saturday June 17th 2017! We have taken this step to encourage as many people as possible to come along and join in – the venue will offer improved transport links […]
Please have a look at the poster here that explains in a nutshell what LAM Action does to support women with LAM in the UK and why it is so important that we get as many members as possible!
Are you still undecided about whether to come to the LAM Action Annual Meeting on Saturday 11th June in Nottingham? Have a look at this video to find out why you should come. Online booking for the meeting has now closed, but if you want to come along at the last minute, please email […]
LAM affects women differently, from their reaction to the diagnosis to the progression of the disease. We have produced this video, in which several women share their own personal thoughts and feelings about having LAM. Thank you to everybody who took part and to David Mercer for the production.
If so we’d love to hear from you! We are always extremely grateful for whatever fundraising our supporters undertake on our behalf, though sometimes we don’t know about it or only find out after the event – which means we can’t always support you as much as we would like. Letting us know your plans […]
Old editions of LAMPost are available in two places (depending on when they were published) The more recent (Summer 2011 onwards, with the exception of Autumn 2011) can be found here. Older ones (Spring 00 to Spring 2011 and also Autumn 2011) can be found here https://www.dropbox.com/sh/v1o3gr9houklqxe/Sea2lemvZz We would like to produce a searchable index to […]
Professor Simon Johnson was presented with the LAM Foundation Award for Scientific Advancement at the LAMposium in Chicago last night (March 28th). The award was presented by Frank McCormack who also summarised and acknowledged Simon’s work and achievements in the world of LAM over the past 15 years and how much that work was valued […]
RareConnect, an initiative of EURORDIS, is a growing online network for rare disease communities, bringing together thousands of patients, families, and groups who might otherwise be isolated. Through RareConnect, patients and those who care for them can communicate, sharing experiences and information in a safe, moderated online forum. With human translation available at no cost […]