Who We Are

LAM Action is a UK registered charity (no. 1167610). Members consist largely of women with LAM and their families and friends. LAM Action is managed by an Executive Committee, all of whom are volunteers and most of whom have LAM. We employ a part-time co-ordinator, Jill Pateman, who is based in Nottingham and works in our office on Wednesdays.

Jill Pateman

LAM Action Co-ordinator

Tel: +44 (0)7710 527636
Email: jill.pateman@office.lamaction.org

Jill joined LAM Action in December 2016 following a long career in the Civil Service and several jobs in the charity sector. Alongside working for LAM Action one day a week, she continues to facilitate training courses run by Breast Cancer Care for clients who have completed their hospital treatment.  She lives in rural north Nottinghamshire with her husband, dog and two cats.  In her spare time she enjoys walking, gardening, reading and theatre.

Leanne Lillywhite-Sutton

Chair LAM Action

Leanne lives in Stourbridge in the West Midlands with her husband James, daughter Isemay and two dogs Millie & Badger. Leanne is Chair of LAM Action, a keen fundraiser for the charity and also supports her Husband with his Financial Advice Business. In her spare time she loves shopping (especially for shoes and handbags), taking her dogs for long walks in the countryside, doing spin classes, eating out, gardening, enjoying family days out, spending time in the South of France and is (for her sins) a devoted West Bromwich Albion FC fan. Leanne was diagnosed with LAM on Valentine’s Day in 2012 after suffering with multiple pneumothoraces for over a year. Leanne was co-opted to the Executive Committee in October 2014 after being involved in various fund raising activities.

John Thompson

Secretary

John lives in the Midlands with his wife and two sons and when he isn’t running his consultancy, training and coaching business he can be found standing on various football and hockey touchlines cheering on his children. When he gets a moment to himself he likes nothing more than long walks in the country, running, and cycling. A keen Francophile, John used to live in France and returns as often as he can and plans to retire there (if he can convince his wife). John came to the LAM Action following the diagnosis of his friend Leanne Lillywhite-Sutton and having run a 10k race to raise money for the charity.

Sarah Sharples

Treasurer

Sarah Sharples is LAM Action's new treasurer and was elected at our Annual Meeting on 7th June 2014. Sarah was diagnosed with LAM in May 2011. Sarah is a qualified Chartered Certified Accountant and runs her own accountancy firm in Clitheroe. She leads a very active lifestyle, which includes travelling, going to the gym, spinning, yoga and walking. She loves to share her love of being active with her daughter and miniature schnauzer.

Katie Drew

Katie is a primary school teacher and lives in Devon with her husband Nick and Golden Retriever Suki. Eager to maintain an active lifestyle; Katie can often be found taking her dog Suki on long woodland walks and attending body pump and combat classes. Katie was diagnosed with LAM in February 2016 after suffering from pain in her left side (from a kidney angiomyolipoma) since 2012 and regular breathlessness.

Lucy Falconer

Lucy has been interested in LAM research since her diagnosis in 1989. By travelling to LAM events in Europe and the US, she has enjoyed learning about ongoing research and meeting LAM patients from many countries. Though Lucy can no longer travel due to her oxygen needs, she stays active by volunteering with her local Breathe Easy group and the service user/carer group for Buckinghamshire. Lucy is also a volunteer advisor to parents of children with special needs. On Monday, Wednesday and Friday mornings she can be found keeping strong(ish) at the gym.

Gill Hollis

Gill lives in Edinburgh with her husband Peter, and was diagnosed with LAM in 1992, aged 27. However, a lung transplant in 2004 has allowed her to live an active life again. Gill works in the investment industry but more recently has developed a parallel career as a health advocate. Her interests are travelling, playing sport and photography, and she’s never happier than when combining all three!

Professor Simon Johnson

Simon is Professor of Respiratory Medicine and Director of the National Centre for LAM at the University of Nottingham. His research group works on how the lungs are damaged in chronic respiratory diseases including LAM. He is medical advisor to LAM Action, was co-chair of the European Respiratory Society Task Force on LAM, is a specialist clinical advisor to the Tuberous Sclerosis Association UK, and is a member of the LAM Foundation basic science board and the British Thoracic Society Council. When not at work Simon enjoys music and the cinema, tries to play guitar (not always successfully) and attempts to ride a mountain bike without injury.

David Mercer

David first became aware of LAM when his partner, Julie Mullins was diagnosed in 2007. He was co-opted on to the Executive after attending the AGM in the same year. David is a television producer and used his charm to persuade Juliet Stevenson to become LAM Action’s Patron. David looks after the organisation of our London Marathon and British 10k runners, as well as the Ride London cyclists so please get in touch if you or a friend are tempted to give any of these events a try.

Anne Tattersfield

Anne came to Nottingham as Professor of Respiratory Medicine in 1984 with a major interest in asthma. By chance she saw a few patients with LAM so arranged for them to meet together to talk. This was clearly appreciated and led to the first national patient meeting and our early research. Since retirement Anne has more time for activities such as painting and gardening.

Kelly Vance

Kelly was diagnosed with LAM over 18 years ago and has served on the Executive Committee since 2007. She was elected Chair in June 2012 and served in that position until June 2017. A lawyer, dog lover, wine enthusiast and addict of home renovation shows, Kelly enjoys volunteering in her spare time to help LAM Action. She lives in London with her partner, Kevin, and their two rescue dogs.

John Wood

John joined the LAM Action Executive Committee in 2012 after being involved in various initiatives and fundraising events. John is married to Sarah who has been a LAM patient since diagnosis in 2010, and they live in North West London with their daughter Lucy. John works as a graphic designer by day and also designs for two other charities in his spare time. When he’s not designing stuff he’s usually watching Watford play football and his second home is Vicarage Road.